1: Pediatric Immunology and Rheumatology Referral Center, First Department of Pediatrics, Aristotle University, Hippokration General Hospital, Thessaloniki, Greece
2: Outpatient Clinic of Connective Tissue Diseases, Fourth Department of Internal Medicine, Aristotle University, Hippokration General Hospital, Thessaloniki, GreeceVolume 27, Issue 4, December 2016
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Mediterr J Rheumatol 2016;27(4):218-23
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Coordinated transitional care of N. Greek pediatric SLE patients: could it be improved?
References
- American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ. Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home. Pediatrics 2011;128:182–200.
- Nagra A, McGinnity P M, Davis N, Salmon A P. Implementing transition: ready steady go. Arch Dis Child Educ Pract Ed 2015;100:313–20.
- de Camargo O K. Systems of care: transition from the bio-psycho-social perspective of the International Classification of Functioning, Disability and Health. Child Care Health Dev 2011;37:792-9.
- Calvo Ι, Antón J, Bustabad S, Camacho M, de Inocencio J, Gamir M L, et al. Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset. Rheumatol Int 2015;35:1615–24.
- McDonagh J E, Kaufman M. The challenging adolescent. Rheumatology 2009;48:872–875
- Hollander M C, Sage J M, Greenler A J, Pendl J, Avcin T, Espada G, et al. International Consensus for Provisions of Quality-Driven Care in Childhood-Onset Systemic Lupus Erythematosus. Arthritis Care Res 2013;65:1416–23
- Groot Ν, Sylvia Kamphuis S. Long-term outcomes in childhood-onset systemic lupus erythematosus: preliminary results of the CHILL-NL study. Pediatric Rheumatol 2014;12(Suppl 1):P311.
- Jensen P T, Karnes J, Jones K, Lehman A, Rennebohm R, Higgins GC, et al. Quantitative evaluation of a pediatric rheumatology transition program. Pediatric Rheumatol 2015;13:17.
- McDonagh J E. Transition of care from paediatric to adult rheumatology. Arch Dis Child 2007;92:802–7.
- Jordan A, McDonagh J E. Recognition of emerging adulthood in UK rheumatology: the case for young adult rheumatology service developments (Editorial). Rheumatology 2007;46:188–91.
- Sattoe J N T, Hilberink S R, van Staa A, Bal R. Lagging behind or not? Four distinctive social participation patterns among young adults with chronic conditions. J Adolesc Health 2014;54:397–403.
- Chira P, Ronis T, Ardoin S, White P. Transitioning youth with rheumatic conditions: perspectives of pediatric rheumatology providers in the United States and Canada. J Rheumatol 2014;41:768-79.
- Hilderson D, Moons P, Westhovens R, Wouters C. Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare. Rheumatol Int 2012;32:3887–96.
- Stringer E, Scott R, Mosher D, MacNeill I, Huber A M, Ramsey S, et al. Evaluation of a Rheumatology Transition Clinic. Pediatric Rheumatology 2015;13:22.
- Borgia R E, Silverman E D. Childhood-onset systemic lupus erythematosus: an update. Curr Opin Rheumatol 2015;27:483-92.
- Tunnicliffe D J, Singh-Grewal D, Chaitow J, Mackie F, Manolios N, Lin M W, et al. Lupus means sacrifices - the perspectives of adolescents and young adults with systemic lupus erythematosus. Arthritis Care Res (Hoboken) 2016;68:828-37.
- Moorthy L N, Roy E, Kurra V, Peterson M G, Hassett A L, Lehman T J, et al. Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration. Pediatr Rheumatol Online J 2014;12:49.
- Nalbanti P, Stefanidou S, Alfantaki S, Siamopoulou A, Trachana M, Galanopoulou V, et al. A Greek multicenter study comparing the clinical and immunologic phenotypes between adult and juvenile- onset lupus. Pediatr Rheumatol 2011;9(Suppl 1):P245.
- Moorthy L N, Roy E, Kurra V, Peterson M G E, Hassett A L, Lehman T J A, et al. Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration. Pediatr Rheumatol 2014;12:49.
- Levy D M, Peschken C A, Tucker L B, Chédeville G, Huber A M, Pope J E, et al. Association of health-related quality of life in childhood-onset systemic lupus erythematosus with ethnicity: results from a multiethnic multicenter Canadian cohort. Arthritis Care Res (Hoboken) 2014;66:1767-74.
- Knight A, Weiss P, Morales K, Gerdes M, Rearson M, Vickery M, et al. Identifying Differences in Risk Factors for Depression and Anxiety in Pediatric Chronic Disease: A Matched Cross-Sectional Study of Youth with Lupus/Mixed Connective Tissue Disease and Their Peers with Diabetes. J Pediatr 2015;167:1397-403.e1.
- Moorthy L N, Weiss E, Peterson M G, Hassett A L, Lehman T J; International SMILEY Collaborative Group. An update on cross-cultural adaptation of US English SMILEY. Lupus 2012;21:1450.
- Bingham C A, Scalzi L, Groh B, Boehmer S, Banks S. An assessment of variables affecting transition readiness in pediatric rheumatology patients. Pediatr Rheumatol Online J 2015;13:42.
- McDonagh J E. Lost in transition? Between paediatric and adult services. BMJ 2006;332:435.
- McDonagh J E, Hackett J, McGee M, Southwood T, Shaw K L. The evidence base for transition is bigger than you might think. Arch Dis Child Educ Pract Ed 2015;100:321–2.
- Bichile T, Petri M. Prevention and management of co-morbidities in SLE. Presse Med 2014;43:187–e195.
- Koutsonikoli A, Trachana M, Heidich A B, Galanopoulou V, Pratsidou-Gertsi P, Garyphallos A. Dissecting the damage in Northern Greek patients with childhood-onset systemic lupus erythematosus: a retrospective cohort study. Rheumatol Int 2015;35:1225-32.
- Ruperto N, Buratti S, Duarte-Salazar C, Pistorio A, Reiff A, Bernstein B, et al. (for PRINTO). Health-related quality of life in juvenile-onset systemic lupus erythematosus and its relationship to disease activity and damage. Arthritis Rheum 2004;51:458-64.
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