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Volume 32, Issue 1, March 2021




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Mediterr J Rheumatol 2021;32(1):66-73
Development of an Educational Video for Self-Assessment Of Patients with RA: Steps, Challenges, and Responses
Authors Information

1. Saint-Joseph University, Beirut, Lebanon
2. Weill Cornell Medicine, Doha, Qatar
3. Cairo University, Cairo, Egypt
4. Al-Bashir Hospital, Amman, Jordan
5. Heartbeat Clinic, Beirut, Lebanon
6. Levant Hospital, Beirut, Lebanon
7. Hamad Medical Corporation, Doha, Qatar
8. King Hussein Medical Center, Amman, Jordan
9. Dr Humeira Badsha Medical Center, Dubai, United Arab Emirates
10. Specialized Medical Center, Riyadh, Saudi Arabia
11. King Faisal Specialist Hospital, Jeddah, Saudi Arabia
12. Mediclinic City Hospital, Dubai, United Arab Emirates
13. American University of Beirut, Beirut, Lebanon
14. Lebanese University, Beirut
15. Holy-Spirit University, Kaslik, Lebanon
16. Monla Hospital, Tripoli, Lebanon
17. Al-Zahraa Hospital, Beirut, Lebanon
18. Assiut University, Egypt and King Hamad University Hospital, Bahrain
19. Z-Clinic, Beirut, Lebanon
20. Jordan Hospital, Amman, Jordan

Nelly Ziade

Abstract

Objectives: The primary objective was to develop an educational video to teach patients with rheumatoid arthritis (RA) self-assessment of their disease activity. Secondary objectives were to validate the video, identify the challenges in producing it, and the responses to these challenges. Methods: Rheumatologists from 7 Middle Eastern Arab countries (MEAC) discussed unmet needs in the education of patients with RA. They reviewed pre-existing educational audiovisual material and drafted the script for a new video in Arabic. The video was produced in collaboration with a technical team, then validated by patients using a standardized interview. At each step of production, challenges were identified. Results: Twenty-three rheumatologists from MEAC identified unmet needs in patients’ education. A video was produced, explaining the concepts of treat-to-target and showing a patient performing self-assessment using DAS-28. Sixty-two patients were interviewed for validation and found the video to be useful and easy to understand, albeit not replacing the physician’s visit. Most common challenges encountered included acceptance of patient empowerment, agreement on DAS-28 as composite measure, production of a comprehensible written Arabic text, and addressing the population cultural mix. ConclusionDespite challenges, the video was well accepted among patients and can be used for clinical and research purposes. It is particularly useful in pandemic periods where social distancing is recommended.


Article Submitted: 5 Jul 2020; Revised Form: 6 Sep 2020; Article Accepted: 15 Oct 2020; Available Online: 4 Mar 2021

https://doi.org/10.31138/mjr.32.1.66

This work is licensed under a Creative Commons Attribution 4.0 International License (CC-BY). 

©Ziade N, Arayssi T, El-Zorkany B, Aiko A, Abi Karam G, Abu Jbara M, et al.